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Top : Genetic Disorders : Down Syndrome
Genetic Disorders - Down Syndrome -
site listings
Health Care for Adults With Down Syndrome
- Recommendations on their specific health maintenance needs.
Positively Down
- Parent led resource, support and social group for families of children with Down syndrome in and around London Borough of Richmond, UK
Families Dealing With Down Syndrome
- A family oriented e-mail group that is geared towards the love, support and health of children with Down Syndrome.
Diagnosis Down Syndrome
- Personal, loving stories from parents on adoption of a Down Syndrome baby. Also stories from those that found out during the pregnancy, and those that had a diagnosis after.
Trisomy 21 Online Community
- For all those touched by people with all three forms of Trisomy 21. Community includes message forums, chat room, information for parents who have just found out their child has Trisomy 21, pictures and many other information pages and links.
Downscreening
- Deze website wil U informeren over de screening tijdens de zwangerschap naar Down syndroom door analyse van moederlijk bloed en echografie. Deze screeningstest bepaalt het risico op Down syndroom.
Articles on Communication
- How parents can teach their children with Down Syndrome to talk and communicate effectively.
Uno Mas Down Syndrome Online
- Supportive online group of parents & friends of kids with Down Syndrome. Message Boards and Personal Stories. Hundreds of photos.
Duo - The Film
- Duo is the first film to star a boy with Down syndrome, Stephane Ginnsz. The site features a trailer and info on Duo.
Mosaic Down Syndrome
- Stories, message boards, and a FAQ.
Cincinnati Children's Hospital Medical Center
- Page provides information about Down Syndrome (Trisomy 21) and its characteristics, problems, signs, treatment, prognosis information and pediatric specialists.
Jesus and Downs
- Message board to connect Christian parents who have a loved one with Down Syndrome.
[HealthBoards.com] Down Syndrome Message Board
- The archives of this board.
Down Syn On-Line Magazine
- Focusing on first-person experiences, opinions, pictures, and questions from those who love someone with Down Syndrome.
Mayo Clinic: Down's Syndrome
- A description of the disease plus complications, risk factors, diagnosis and treatment.
Growth Charts for Children with Down Syndrome
- Charts included are for height, weight, and head circumferences. Printable.
Chapel Haven - New Haven, Connecticut
- Residential school and independent living facility offering a range of supports for adults (18+) with cognitive disabilities
Epilepsy-Down Syndrome Foundation
- Research into the dual diagnoses of Down syndrome and epilepsy. Emphasizes nutritional and non-medical interventions.
Diagnosis Down Syndrome
- News, Information and resources related to Down Syndrome.
DS Sites on the Internet
- A large listing of sites on the internet dealing with Down Syndrome, compiled by Len Leshin, M.D.
Down Syndrome: For New Parents
- Dedicated to providing parents with information about Down syndrome.
Health Issues in Down Syndrome
- A collection of medical essays and abstracts for parents.
Down's Syndrome Medical Interest Group (UK)
- Information for healthcare professionals, including UK-specific growth charts, guidelines, and medical information library.
New Attitudes Enhance Care of Adults with Down Syndrome
- A short MCW healthlink article by Dr. David Smith regarding successful health care management of people with Down syndrome.
Down Syndrome Information Network
- Includes a online library of books and articles.
eMedicine Health: Down Syndrome
- Provides an introduction to the disease and its characteristics, symptoms and treatment.
Learn about Down Syndrome
- What it is, symptoms, and statistics as to how often it occurs.
The Possible Dream Foundation, Inc.
- Camille and Dr. Michael Geraldi provide long and short term respite and medical care for Down Syndrome children and adults in non-sectarian group homes. Find a newsletter, events and trips, photos, news and contact details.
The PREP Program
- A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
National Down Syndrome Cytogenetic Register (UK)
- Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results.
Yahoo! Groups : Christian-DS-Parents
- Mailing list for parents of Down Syndrome children who are practicing Christians.
Down Syndrome
- A listing of organizations worldwide, support groups, and toy catalogs for children of special needs.
Down Syndrome Forum
- Find a community for families associated with down syndrome to share. Includes discussions, web links, surveys and stats.
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