Top : Genetic Disorders : Cystic Fibrosis

CFTR and Genetic Mutations Camps Conferences Fund-Raisers Mailing Lists Medical Facilities News and Media

Organizations Personal Pages Pharmaceuticals and Supplies Research Support Groups Testing Web Rings

Genetic Disorders - Cystic Fibrosis - site listings

Cystic Fibrosis Links - Cystic Fibrosis Links and Information

Cindy's Friends - Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.

CF Advantage - The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz

The Breathing Room - Guidance about the art of living with cystic fibrosis.

CysticFibrosis.com - Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.

Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format

Medline Plus - Cystic Fibrosis - A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.

Home Page-Harminder - Details from an article 'CFTR as a cAMP-Dependent Regulator of Sodium Channels'. Also, what new treatments might devolop if the theory behind this article prove true.

Irri Shark's Page - About the '65 roses' story.

CF Prescriber - Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.

Manual for Cystic Fibrosis Patients and their Families - From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.

Mamas Health - Find out what Cystic Fibrosis is, the symptoms and the causes.

A-Z Directory of Cystic Fibrosis Resources - Biomedical directory with listings of hospitals, charities, research, and information by topic and location.

Jewish Genetic Diseases - Cystic Fibrosis - Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.

Yahoo! Health - Cystic Fibrosis

Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.

The Spirit of Lo - Inspirational Book - Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.

Cystic Fibrosis I.Q. Test - Test what you know about cystic fibrosis.

Cystic Fibrosis Medicine - Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family

PulmonologyChannel - Information on cystic fibrosis.

Cystic Fibrosis Resource Centre - A source of information for cystic fibrosis patients, parents, doctors and other carers.

Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.

Cystic Fibrosis Management - Article detailing therapeutic options for co-management.

MyCysticFibrosis.com - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.