Top : Chronic Illness

Pediatric

Chronic Illness - site listings

Preventing Disability in the Elderly With Chronic Disease - Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).

Chronic Illness Tips - Daily living strategies for coping, sorted by body parts. Personal website.

Coping with Long-term Physical Illness and Pain - Short explanation of defense mechanisms or coping styles to counselors of patients.

Expert Patients Programme for Long-term Patients - Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.

Illness, Disability and Social Inclusion - Eurofound overview of social barriers and evaluation of relevant European policies (education, social security, employment, anti-discrimination, independence) by European Foundation for the Improvement of Living and Working Conditions (170 pages). [PDF]

Coping with Chronic Illness and Depression - How to recognize depression and when to consult the doctor. [PDF]

Chronic Condition Self-Management Literature - Lists 330 books and articles, dated September 2003. [PDF]

Living with Fibromyalgia Syndrome - Over 20 personal articles relevant to deal with any other chronic condition as well.

Guidance for People Facing Serious Illness - Handbook for mortals gives short, practical advice how to handle serious illness and dying.

Preventing Chronic Disease: Public Health Research, Practice and Policy - On line Public Health Research peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.

Chronic Conditions - SeniorNet Patient advise on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.

Chronic Disease Surveillance in Canada - Background paper also proposes multi-partnered data base renewal (2003). [PDF]

Center for Research on Chronic Illness - Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.

Faced with a Life Threatening Illness. - Questions, concerns and links provided by Australian Palliative Care Council.

Self Management of Long-Term Illness - Seminar from The Pituitary Foundation's Third National Conference.

Chronic Disease Prevention - Overview by National Center (U.S.) offers statistics, (state) programs, risk surveillance and risk factors per state.

Coping with Chronic Illness - The Fathers Network on how to deal with physical, emotional and spiritual aspects; applies to anyone with a longterm disease.

Ten Steps for Coping with a Chronic Condition - Harvard Health Publication Letter. Patient oriented advise.

Learning to Live with a Chronic Condition - Patient advise to communicate with health team; to learn; to decide on a treatment plan; to minimize costs. Lifepath Information Series.

Chronic Disease Management - Chronic Care Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.

Living with Chronic Illness and Disease - Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.

Chronic Disease: Forming Healthy Relationships - Advise for doctors and health workers on treatment and support of chronic ill patients. [PDF]

Living with Long Term Illness - Self Managing - Lifestyle changes are effective in self-managing a condition.

Dealing with Illness and Disability - Entries to council, community and government support by the London Borough of Hackney. Categories are: jobs, leisure, transport, hospitals, meals, physical disabilities, allowances.

Chronic Illness Coping - Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.

A Day in a Life with Chronic Illness - Description of events for better understanding. Personal site.

Learning to Cope with Chronic Illness - Senior Citizens practical advise to patients and significant others.

Living with Long Term Illness - Tips and ideas on dealing with a chronic condition in daily life. Personal site.

Yoga For Chronic Illness - Yoga helps to maintain and restore health by stretching and breathing, short article.

Poem, Pain Management, Chronic Illness - Poem about coping with pain using relaxation and imagery.

Chronic Illness Acceptance is First Step towards Healing - Short description of the day to day acceptance process.

Improving Chronic Illness Care - Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, the health system, self-management support, delivery system design, decision support and clinical information systems.

Coping with a Chronic Illness in your Family - Advice to family members, including communication, financial matters, independence and taking charge.

Coping with Chronic Illness Stages - Paper discusses illness as a process with stages: crisis, isolation, anger, reconstruction, intermittent depression, and renewal. Adapted from 'After The Diagnosis' by Dr. JoAnn LeMaistre

Effectiveness of Self Management with Chronic Disease - Paper discusses core skills, use in educational programs, effects on health status, key ingredients for more efficacy. [PDF]

Managing your Chronic Illness - British Columbia's patient information with links to programs.

Self-Management Programs - Stanford Patient Education Research Center - Center develops, evaluates, and disseminates community-based, peer-led, self-management programs for people with all kinds of chronic diseases. Part of School of Medicine, California.

Living with Chronic Illness - Advise on adjustments to patients, and short comment on hope. Personal site.

Living with Chronically Ill People - Adjusting to illness in the family, several personal articles.