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Anencephaly Information
- Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
Yahoo! Groups: Anencephaly
- Global Health Network support group open to anyone affected by anencephaly.
NINDS: Anencephaly
- Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Faith Aminah Shabazz
- Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
Anencephaly Net
- An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
Anencephaly - Jessicas Journey
- A parent's personal experience, relating her daughter's story.
Moral Principles Concerning Infants with Anencephaly
- Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
Mourning Mommies
- Online support group for women who have lost babies to anencephaly.
Carrying to Term Pages
- Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
Anencephaly Support Foundation
- Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
Yahoo! Groups: Anencephaly Blessings from Above
- A Christian pro-life support group for parents those carrying to term.
Anencephaly Awareness
- Information including possible causes and future prevention. Also a personal story.
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